Terms of reference
The PGD National Indications Committee was established in response to the State Secretary for Public Health, Welfare and Sport’s decision of 3 March 2009. Its members were appointed by the professional association of clinical geneticists, VKGN, and the professional association of gynaecologists, NVOG.
Every time Maastricht UMC+’s PGD working group considers conducting PGD to screen for a disease or condition which has not been PGD-screened for before (thus causing an expansion of the scope of PGD), the Indications Committee must evaluate whether the disease or condition in question falls within the boundaries of what is ethically and socially acceptable. In so doing, the Indications Committee must be guided by the framework for decision-making outlined in the Staatscourant.
The Committee does not evaluate actual individual cases, because such cases can only be evaluated in the context of the relationship between the patient and her healthcare provider. Cases are deemed to be exemplary of a particular clinical picture.
Composition of the National PGD Indications Committee
- Prof. M. Breuning, professor of clinical genetics, LUMC Leiden (chair)
- Dr. I. Bolt, ethicist, Rotterdam Erasmus MC / Utrecht Institute of Ethics
- Prof. A.L. Bredenoord, ethicist, Utrecht UMC
- Dr. R-J. Galjaard, clinical geneticist, Rotterdam Erasmus MC (secretary)
- Dr. J. Giltay, clinical geneticist, Utrecht UMC
- Dr. M. Cohen de Lara, gynaecologist, Utrecht UMC
- Dr. C. Oosterwijk, director of VSOP (on behalf of patient organisations)
- Dr. E.J.T. Verwey, gynaecologist